A group at Johns Hopkins Medical Center has been working (with support from ClotCare) to develop and promote ways to increase patient awareness of issues related to venous thrombosis (VTE). That group just provided ClotCare with the following message which also includes a link to a new patient-focused video.
In 2013, we were awarded a contract by the Patient-Centered Outcomes Research Institute (PCORI) with the goal of increasing patient understanding and improving patient-nurse communication about the harm of venous thromboembolism (VTE) and the benefits of preventive treatment. In partial fulfilment of this goal, we have developed a patient education video. The video was developed with significant input from patients and stakeholder organizations including Clot Care, North American Thrombosis Forum (NATF), National Blood Clot Alliance (NBCA) and the Johns Hopkins Hospital Patient and Family Advisory Council (JHH PFAC). Input was obtained through the Delphi Survey, multiple focus groups including a meeting with the JHH PFAC, and from participants at our 2015 VTE Symposium. Now that the video has been fully developed and launched, we would like it to be made widely available. It is already posted on our newly developed website, YouTube, Twitter and Facebook and has received an impressive response so far. To further enhance the reach of this important educational tool, we are requesting your help in disseminating it to your networks via your social media pages and your organizations’ websites. You can access the video at http://bit.ly/bloodclots.
Thank you and we look forward to your continuing partnership. The Johns Hopkins VTE Collaborative Elliott R. Haut MD PhD FACS, Michael B. Streiff MD FACP, Peggy S. Kraus PharmD CACP, Brandyn D. Lau MPH CPH, Deborah B. Hobson BSN, Kenneth Shermock PharmD PhD, Norma E. Farrow BA, Dauryne L. Shaffer MSN RN CCRN, Victor O. Popoola MBBS MPH Sc.M